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Parents and carers in East Sussex are warmly invited to come along to our virtual drop-in sessions to share experiences, ask questions, or just have a chat about how things are going. Upcoming dates, along with the Zoom links, are listed below. You are welcome to pop by anytime during the session. Tuesday 12 January … Read more

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ESPCF has coproduced with East Sussex healthcare and education services a leaflet to help parent carers manage before, during, and after their child or young person has a meltdown. Download the Managing a Meltdown leaflet – A Parents’ Guide (PDF) It was produced by a working group called APRIG, which stands for Autism Pathway Review … Read more

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We’re delighted to publish today our joint Pathological Demand Avoidance (PDA) position statement which we coproduced with education and health professionals. The purpose of the statement is to make sure there are consistent messages and a shared understanding about PDA across the local authority, schools, health, and the forum, so that children and their families … Read more

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The children and families minister, Vicky Ford MP, has replied to our joint letter, sent in July this year, in which we call for an inclusive and non-punitive return to school for all SEND children and young people. Our letter was written together with Brighton PaCC, Reaching Families in West Sussex, and the charity Amaze. … Read more

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SEND families may find it useful to read the letter from Vicky Ford MP, Children and Families Minister, published on 2 September 2020, which outlines support for children and young people with SEND returning to school. The sections on behaviour policies and risk assessments may be of particular interest. Download the letter to SEND families

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For SEND families, there are lots of factors to take into account ahead of schools fully reopening in September, and we know many of you may not feel ready yet. A big concern is around whether the right support will be in place for your child or young person. ESPCF has been working hard to … Read more

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ESPCF and a group of local charities and parent carer forums are writing collectively to ask that they give, and/or actively encourage school leaders and decision makers, both locally and in government to give, all children and young people the best possible welcome back to school in September, with a clear focus on the needs … Read more

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We are delighted to announce that Holly Riley-Saxby will be the new East Sussex Parent Carer Forum (ESPCF) chair. Holly will lead the forum through its next phase (July to December 2020), working to ensure that it delivers on its vision, mission, and values, while championing co-production of services with parent carers of children and … Read more

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Following feedback from parent carers, we have produced a factsheet to help explain the risk assessment process: what it is, what happens, and how to ensure you are properly involved. ESPCF Risk Assessment Factsheet

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This is an extremely challenging time for families and we recognise that trying to find the specific information you need can feel overwhelming. As a result of feedback we have received from you, we have created one resource document which is clearly labelled according to different needs, for example challenging behaviour, sensory issues, communication, and … Read more