Placing the views of all parent carers at the heart of decision making.

We are the new forum for parent carers of children and young people with special educational needs and disabilities (SEND) in East Sussex.
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About Us

We work together to ensure every parent carer in East Sussex feels that their voice, their views and their experiences matter and contribute towards developing and improving services. We do this by:

Reaching out to parent carers to hear their views

Representing parents’ experience and expertise to decision-makers

Making recommendations for service improvement

For Parent Carers:

Please join us and get involved in raising awareness of our children’s needs, recognition of our role as parent carers and bringing about change.

For Organisations that Provide a Service:

Please get in touch to discuss how we can work together to strengthen your support to local families.

News and Resources

Emotionally based school avoidance (EBSA) parent carer group

We are looking for additional parent carers with experience or knowledge of emotionally based school avoidance (EBSA) to join our ‘reference group’ and help us to ensure a strong parent carer voice is heard and acted on in the local authority’s EBSA work.

East Sussex & the SEND ‘Change Programme’

East Sussex is one of the local areas involved in the government’s SEND ‘Change Programme’, which means the local authority will be trialling some potential reforms as set out in the national SEND and Alternative Provision Improvement Plan. Click to find out more.

Changes to paediatric services at Eastbourne hospital

Read about our recent meeting with directors from Eastbourne District General Hospital to discuss the changes being made to paediatric services and what this may mean for SEND families.