Read our recommendations which are based on feedback from East Sussex families to help inform the NHS keyworker service
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Read about the latest news on the NHS keyworker project for children with complex mental health needs, where we’ve been across the county, and what else is keeping us busy day-to-day.
Each term we ask parent carers in East Sussex to let us know their overall feelings about how things are going in what we call our ‘temperature check’ poll. Click to see the results.
Find out about the updated short breaks offer from East Sussex County Council, following feedback from families about what they’d like to see.
Share your ideas on improving the experience of MRI scans for families with children and young people with special educational needs and disabilities.
ESPCF would like to talk to families in East Sussex to help shape an NHS initiative which will provide keyworkers for children and young people with complex mental health needs. Specifically, if your child or young person is autistic or has learning disabilities, or both.
Read about a recent meeting we attended at Chailey Heritage School to discuss the transition to adult services for young people with complex neurodisabilities.
Many families are in severe need of short break and respite services in East Sussex. Read the key messages from our recent focus groups, the short breaks survey results and find out what happens next.
Read about upcoming workshops and local drop-in sessions, as well as what parent carers told us they need from the new support service for families with children and young people on the neurodevelopmental pathway.
Read our response to the government’s review of special educational needs and disabilities (SEND), which we submitted to the Department for Education just before the summer, on Friday 22 July 2022.