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ESPCF has published the results of its parent carer survey 2023-2024. The overall message is that families are not receiving the SEND support that their children are entitled to, and parent carers continue to face battles for their child’s needs to be met. Read more.

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An exciting opportunity to come and work with us on two key projects as an engagement worker.

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Young boy is cooking in a kitchen, watched over in the background by a female adult

ESPCF meets every half term with the SEND (special educational needs and/or disabilities) commissioning team at East Sussex County Council. It’s an opportunity to hear updates and share feedback. Read our latest update.

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Young child balancing on wooden poles holding onto to outstretched hand from grown up

The three Sussex parent carer forums – East Sussex, Brighton, and West Sussex – have published a statement calling for urgent action to tackle alarming situation facing SEND families with children and young people on the neurodevelopmental pathway.

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We are looking for additional parent carers with experience or knowledge of emotionally based school avoidance (EBSA) to join our ‘reference group’ and help us to ensure a strong parent carer voice is heard and acted on in the local authority’s EBSA work.

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East Sussex is one of the local areas involved in the government’s SEND ‘Change Programme’, which means the local authority will be trialling some potential reforms as set out in the national SEND and Alternative Provision Improvement Plan. Click to find out more.

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Read about our recent meeting with directors from Eastbourne District General Hospital to discuss the changes being made to paediatric services and what this may mean for SEND families.

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ESPCF has published a report highlighting the difficulties that families who have children and young people with special educational needs and disabilities (SEND) often face when trying to access mental health and social care support, including overnight respite.

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We’ve published our report on the key issues and our recommendations for change as a result of your feedback on the challenges faced and support needed for families with children and young people on the neurodevelopmental pathway.

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An updated version of the co-produced PDA (Pathological Demand Avoidance) position statement is now available.