East Sussex Parent Carer Forum has published a position statement which demonstrates the priorities we have raised with East Sussex County Council when discussing retendering of some home to school transport contracts during 2021 for children and young people with special educational needs and disabilities. The statement also outlines transport issues outside the retender process … Read more

We are so sorry to have to tell you that Jo Nye, our brilliant vice chair, has made the decision to step down from her position at the forum. Jo has been the heart of ESPCF since it began and has worked, and continues to work, tirelessly for SEND families across East Sussex.

A comment made by Jo on social media, outside of ESPCF, and made as a parent carer, was challenged by East Sussex ISEND.

The forum is not in agreement with the challenge posed by ISEND and sought to have direct dialogue which was denied.

We are sad and disappointed that ISEND has not given us or Jo the opportunity to agree a fair and satisfactory resolution in order to avoid this outcome. We are urgently reviewing our policies to ensure that any parent carer working with ESPCF is safe, confident and able to express their personal views outside of the forum as they would usually do. At times, these views will be strong and therefore difficult to hear because they are borne out of immensely frustrating and challenging situations. It has become apparent that we do not presently have shared clarity with the local authority around this as an issue and this is why Jo has stepped back from her role. ESPCF is committed to representing the views and experiences of all parent carers in East Sussex.

Jo says,

“I have loved working as part of the team at ESPCF alongside such a dedicated and proactive team of parent carers who are inspiring, motivated and passionate about delivering better outcomes for families living with special educational needs and disabilities.

As parent carers, we all experience ongoing challenges with ensuring our children and young people receive the support they need. I have tried and succeeded in balancing my life as a parent carer, my role running a support group, and my position at the forum by committing to working professionally in coproduction with service providers. However, it has now become apparent that as vice chair of the forum I am unable to express my own experiences at any time in the way I wish.

I have always strived to influence positive change where possible and it is with much regret that I feel my position within the forum has become untenable. I will continue to contribute to the forum as a member.”

We want to place on record our huge gratitude to Jo for everything she has done for the forum, and for her invaluable support, guidance and friendship. Jo remains a member of ESPCF, but we are going to miss working with her so much.

The children and families minister Vicky Ford MP has written an open letter to the SEND community in which she outlines some of the latest information and guidance relating to the current national lockdown. Download letter from Minister Ford to SEND sector 14 Jan 2021 (PDF) Key headlines include: The legal duty on schools and … Read more

Together with our parent carer forum neighbours, and local charities Amaze and Reaching Families, we have created a letter for parent carers and their child or young person with special educational needs or disabilities to use when exercising outside during this latest lockdown (January 2021): Download letter re exercising Jan 2021 (PDF) The purpose of … Read more

Parents and carers in East Sussex are warmly invited to come along to our virtual drop-in sessions to share experiences, ask questions, or just have a chat about how things are going. Upcoming dates, along with the Zoom links, are listed below. You are welcome to pop by anytime during the session. Tuesday 12 January … Read more

ESPCF has coproduced with East Sussex healthcare and education services a leaflet to help parent carers manage before, during, and after their child or young person has a meltdown. Download the Managing a Meltdown leaflet – A Parents’ Guide (PDF) It was produced by a working group called APRIG, which stands for Autism Pathway Review … Read more

We’re delighted to publish today our joint Pathological Demand Avoidance (PDA) position statement which we coproduced with education and health professionals. The purpose of the statement is to make sure there are consistent messages and a shared understanding about PDA across the local authority, schools, health, and the forum, so that children and their families … Read more

The children and families minister, Vicky Ford MP, has replied to our joint letter, sent in July this year, in which we call for an inclusive and non-punitive return to school for all SEND children and young people. Our letter was written together with Brighton PaCC, Reaching Families in West Sussex, and the charity Amaze. … Read more